Thursday, September 22, 2016

The Search for "Normal."



A major part of my journey growing and maturing as a diabetic was at the summer camp, Camp Carolina Trails. To most of you Camp Carolina Trails, or as attendees like to call it “CCT,” may just sound like an ordinary summer camp. CCT is located at YMCA Camp Hanes, in King, North Carolina. The camp lasts from a Sunday to a Saturday in June, one week long. The week is packed full of fun, games, and activities all week long for campers entering grades third to eleventh. During CCT, campers stay in cabins furnished with six to eight bunks, a locker for each person, and a three stall bathroom with a shower. Typically, around 12 people stay in each cabin, ten campers, and two counselors. Activities at camp range from swimming, hiking, crafts, campfires, dances, etc. Although camp is full of fun and games, there is one major thing about CCT that makes it different from a typical summer camp, almost everyone lives with Diabetes. Camp Carolina Trails is a summer camp for diabetic children to come and experience the fun of camp while in a safe, learning, positive environment. The majority of the counselors and staff at Camp Carolina Trails are former campers, which means they also have diabetes. Since diabetes is not the minority at camp, being at camp allows everyone there to feel comfortable and “normal.”


All of that being said about Camp Carolina Trails, I will now tell you about my personal experience with CCT.
Let me rewind a bit...


Before I was introduced to Camp Carolina Trails, I only knew maybe three other people that had type one diabetes. Living in such a small town minimized my circle in the diabetic community. Growing up not knowing anyone else “like me,” was (is) not easy. My parents were, and still are, the biggest support in my life when it comes to living with diabetes. The many questions I had while growing up for them, such as, “why am I the only one checking my blood sugar?” or “Why do I have diabetes?” “Why me???” I was constantly having to explain myself to people and answer questions that were asked to me daily from my peers and others, “Why do you get a snack and I don’t?”or “What is that weird box in your pocket?” Those are the thoughts I had daily, the questions, and the constant mental battle of the difference between normal and different.
“What made ME different?”  
As my parents began to realize I needed clarification and a support system to help manage living with this disease, they started researching, that is when CCT was introduced for the first time to my family. My endocrinologist (diabetic doctor, you could say) talked to me and my parents about CCT, after a year of research and working out my nerves, my parents filled out my application for CCT. After a few months of an anticipated wait, I received an acceptance letter from the director at CCT, “Congratulations Allison! Welcome to Camp Carolina Trails!...” I wasn’t sure, being only 9 years old, what I was about to get myself into (little did I know). The weeks before camp were hectic, it was my first time ever going away from my parents for more than two days (over night), I do believe my mom was more nervous than I was. The last few days before my departure were spent packing everything I could possibly need for seven days and six nights spent in a wooden cabin in the middle of nowhere, including enough diabetes supplies (test strips, sites, lancets, insulin, etc) to last three years. On arrival day at camp, I knew from the moment I stepped into the gymnasium to check in that something there was different, or maybe even normal. Every camper checking in also had a pump, meter, or some kind of diabetic tool, with them while talking to a camp nurse during the check in process. Even though the only people I knew during the check in process were my parents it felt like everyone around me already knew everything about me. I felt at home and I had never been more comfortable being me.

Thursday, September 8, 2016

24 Hours With Diabetes

Living life with diabetes is not just eating sugar free food and drinking diet soda. In fact, it is the complete opposite of the stereotypical “diabetic diet.” Diabetes is a lifestyle that a person must work into their daily routine of life. Following this introduction I will explain some of the things a diabetic uses in their everyday life.
  • Insulin - a hormone produced by the pancreas that regulates glucose in the blood. Insulin is a VERY important hormone in the human body, day to day life is not possible without it. In 1921, Frederick Banting, a Canadian physician, discovered insulin in the pancreatic extracts of dogs. Since then, insulin is produced by many different companies and is produced in two different forms. There are two types of insulin for controlling blood sugar: long acting insulin is typically used in injection form, which is given in large amounts and lasts a few hours per day, depending on the person. Long acting is also known as basal, which is used in pump form. Long acting, or basal, is administered to regulate the natural glucose fluctuations in the human body. Fast acting insulin is the most common form of insulin used in pumps. Fast acting is given to correct high glucose levels and to bolus for food. Insulin is needed all the time, the human body is in a constant state of change and insulin is a major key to keeping the body maintained. When a person’s blood glucose levels are too high and when a person takes food into their body are two of the most crucial times insulin is required. Injections and Pumps allow people with diabetes to have ways to deliver their insulin when needed. Since insulin is always needed, long acting insulin for injections and short acting insulin for basal are very crucial to a diabetics life.
  • Injections - a procedure used to give insulin doses. Injections are used to give long acting insulin and short acting insulin.
  • Insulin Pump - a small device that works as an insulin delivery system for people with diabetes. Before these devices were created injections (shots) were the main method for insulin delivery. Insulin pumps are manufactured by several different brands: Animas, Medtronic, OmniPod, T:Slim, etc. T:Slim is the insulin pump that I use, it is the first touch screen insulin pump in the world. Insulin pumps have different parts: cartridge, tube, and site. The cartridge, or reservoir, holds the insulin. The tube transfers the insulin from the reservoir to the site which is inserted into my skin.
  • Glucometer (meter) - device used to check BG (Blood Glucose).
  • A normal BG level is between 80 and 190. Any number below 80 is considered “low” and any number above 190 is considered high.

The following is a log of my diabetes management from Tuesday, September 6th through Wednesday, September 7th.


Tuesday, September 6th :
10:00pm: Pump site and cartridge change. The video with this blog is a demonstration of changing my pump site and cartridge. I have to do this process every two to three days.


10:20pm: bedtime BG - 248
     Insulin correction - 2.0 U (units)






Wednesday, September 7th :

7:10am: morning check - 59
             Correct with juice and fruit snacks
7:45am: before driving to school check - 79
  Breakfast casserole - 25g (carbohydrates)
  Insulin - 1.88 U
11:04am: lunch check - 141
              Sandwich, chips, water - 40g
   Insulin - 3.6 U
1:15pm: afternoon check - 102
2:44pm: during band practice check - 61
  Correct with fruit snacks
4:13pm: After practice/before dinner check - 92
  Baked potato & salad - 40g
  Insulin - 4.0 U
9:00pm: after dinner check - 244
 Insulin correction - 1.25 U
11:27pm: before bed check - 145

As you can see, my everyday life is not like the average person. When I wake up, the first thing I do is check my BG, and if my BG is in a normal range I continue with my day until the next time to check. My BG levels are not always good though, when my levels are high or low, I have to set time apart from my regular routine to take care of myself before continuing my activities. The information above is just one cycle of 24 hours in my life. Diabetes does not give breaks or vacations. Everyday many diabetics, including myself, go through many different emotional and physical changes due to blood glucose levels rapidly changing. Diabetes affects every aspects of my life, and my life affects every part of diabetes.
I hope this blog post helped those of you who are not as informed about this disease, learn more about what it REALLY is.